Pathways to Participation

Program II sought to maximize the participation of people with MS. We focused on participation within and across settings including the home, community, job, and educational settings. This program was broad in that it focused on both (1) developing a measure of participation as well as (2) exploring other MS symptoms and how they relate to participation.

Through this program we also completed a large cross sectional and longitudinal survey study of 1200 and 400 individuals with MS respectively. This survey was done in collaboration with the University of Washington Center on Outcomes Research in Rehabilitation (UWCORR). We are continuing to publish results from the survey. We have obtained additional funding to continue this survey as part of our current research projects.

Published Manuscripts

1. Yorkston, K. M.; Johnson, K. L.; Klasner, E. R. (2005) Taking part in life: enhancing participation in multiple sclerosis. Physical Medical Rehabilitation Clin North America. 16 (2), 583-594.
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2. Johnson, K; Kuehn, C; Yorkston, K; Kraft, G; Klasner, E; Amtmann, D (2006) Patient Perspectives on Use of Disease Modifying Therapies in MS: A Qualitative Study in Multiple Sclerosis. Int'l J MS Care. 8(1): 11-18
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3. Yorkston, K. M.; Baylor, C. R.; Dietz, J.; Dudgeon, B. J.; Eadie, T.; Miller, R. M.; Amtmann, D. (2008) Developing a scale of communicative participation: a cognitive interviewing study. Disability Rehabilitation. 30, (6), 425-433.
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4. Yorkston, K. M.; Kuehn, C. M.; Johnson, K. L.; Ehde, D. M.; Jensen, M. P.; Amtmann, D. (2008) Measuring participation in people living with multiple sclerosis: a comparison of self-reported frequency, importance and self-efficacy. Disability Rehabilitation. 30 (2), 88-97.
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5. Bamer AM, Johnson KL, Amtmann D, Kraft GH. (2008) Prevalence of sleep problems in individuals with multiple sclerosis. Multiple Sclerosis. 14(8):1127-30.
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6. Johnson, K; Bamer, A. M.; Yorkston, K. M.; Amtmann, D (In Press) Use of cognitive aids and other assistive technology by individuals with MS. Disability and Rehabilitation: Assistive Technology.

Published Abstracts

1. Bamer, A M; Amtmann, D; Ehde, D; Johnson, K L (2008) Anxiety in multiple sclerosis: prevalence and associated factors in a large community sample. Multiple Sclerosis. 14 (S1), S155.
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2. Bamer, A; Johnson, K; Yorkston, K; Amtmann, D (2007) Predictors of Assistive Technology Use for Cognitive Aids in MS. Int'l J MS Care. 9(2): 50
• View the Abstract (Page 50).
3. Klasner, E; Dudgeon, B; Yorkston, K (2005) Asking for help; The experience of individuals with MS. International Journal of MS Care. 7 (2), 65
• View the Abstract (Page 65).
4. Hinton, Karynsa; Yorkston, Kathy; Jensen, Mark; D, Ehde; K, Johnson; A, DiGiacomo; D, Amtmann. (2006) Participation: A Comparison of Frequency, Importance, and Self-Efficacy. Int'l J MS Care. 8(2): 80-81.
• View the Abstract (Pages 80-81).