Life After New Diagnosis (LAND)
What is this study about?
An individual’s life changes when they find out they have MS. They learn that they have a condition that will progress over time, although the exact way that they will be affected is unclear.
The purpose of this study is to better understand how quality of life and other symptoms vary during the first year following a diagnosis of MS. We also want to learn how important symptoms (examples include pain, fatigue, depression, cognitive difficulties) relate to changes in quality of life over time. This information provides researchers with key targets for interventions, with the goal of helping patients to improve in the areas that increase quality of life and protect against the variables that are known to reduce quality of life.
What does the study involve?
Participation in the study involves:
- Filling out of six questionnaires either online or via telephone (about 45-60 minutes each) over time (1-,2-,3-,6-,9- and 12 months following diagnosis).
- No in-person appointments are required for this study.
- Compensation for filling out the questionnaires is provided.
We are looking for people:
- Who have been diagnosed with MS by a medical provider within the past two months at either the UW Medicine MS Center or the Swedish MS Center.
About the researcher:
Kevin Alschuler, PhD is a rehabilitation psychologist who sees patients with MS at the UW Medicine's MS Center. Kevin is interested in positive psychology, such as concepts like happiness, resilience, and coping.
This study is funded by a grant from the National MS Society.