Measuring participation in people living with multiple sclerosis: a comparison of self-reported frequency, importance and self-efficacy.

TitleMeasuring participation in people living with multiple sclerosis: a comparison of self-reported frequency, importance and self-efficacy.
Publication TypeJournal Article
2008
AuthorsYorkston KM, Kuehn CM, Johnson KL, Ehde DM, Jensen MP, Amtmann D
JournalDisability and Rehabilitation
Volume30
Issue2
Pagination88-97
Date Published2008
ISSN0963-8288
Activities of Daily Living, Female, Health Surveys, Humans, Interpersonal Relations, Life Style, Male, Middle Aged, Multiple Sclerosis, Postal Service, Questionnaires, Reproducibility of Results, Self Efficacy, Severity of Illness Index

PURPOSE: To compare three dimensions related to participation in everyday situations in community-dwelling adults with multiple sclerosis (MS). METHODS: Mail survey was obtained from 112 respondents. Data were analyzed using Kendall's tau-b correlation coefficients between responses to participation items relative to three question dimensions (importance, frequency, and self-efficacy) and criterion variables (mobility, depression, general health, fatigue and pain). RESULTS: No significant associations were found between item responses in the importance dimension and the criterion variables. Weak associations were found for items in the frequency dimension, and stronger associations were found for items in the self-efficacy dimension. CONCLUSIONS: Different dimensions of participation in specific life situations yielded different responses and associations of those responses with key criterion measures. Subjective importance of participating in everyday situations is relatively independent of measures of mobility, general health, depression, fatigue and pain. Subjective judgments of self-efficacy for participation are more closely linked to these criterion measures. Caution is warranted when interpreting scales of participation because participation is a complex construct, potentially composed of several dimensions.

10.1080/09638280701191891
Alternate JournalDisabil Rehabil

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