Setting the agenda for multiple sclerosis rehabilitation research.

TitleSetting the agenda for multiple sclerosis rehabilitation research.
Publication TypeJournal Article
2008
AuthorsKraft GH, Johnson KL, Yorkston KM, Amtmann D, Bamer AM, Bombardier CH, Ehde DM, Fraser RT, Starks H
JournalMultiple Sclerosis
Volume14
Issue9
Pagination1292-7
Date Published2008 Nov
ISSN1352-4585
Biomedical Research, Evidence-Based Medicine, Humans, Multiple Sclerosis, Research

BACKGROUND: Recognizing the need for more evidence-based multiple sclerosis (MS) rehabilitation, in the mid-2000s several initiatives were undertaken to explore why there had been a paucity of such research and to determine strategies to reverse this pattern. EXPERT-OPINION-PAPER: In 2004 the National Multiple Sclerosis Society (NMSS) convened an expert opinion panel, reviewed evidence-based MS rehabilitation research, and published the paper on the web. It was concluded that much of the MS rehabilitation carried out was based on experience, with little research backing it up. INCREASING THE QUALITY AND QUANTITY OF MS REHABILITATION RESEARCH: Largely as a result of the conclusions of the Expert-Opinion-Paper, the NMSS convened a conference of a large number of MS and rehabilitation experts in New York in May, 2005. This conference made many recommendations of ways to increase the quantity and quality of MS research. STATE OF THE SCIENCE CONFERENCE: In September, 2006, a follow-up conference was held in Washington, D.C... This conference, primarily sponsored by the University of Washington Multiple Sclerosis Rehabilitation Research and Training Center (MS RRTC), focused on some of the under-studied "hidden" disabilities present in persons with MS. This paper discusses the details and recommendations of these latter two conferences.

10.1177/1352458508093891

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