Self-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test.

TitleSelf-administered Expanded Disability Status Scale with functional system scores correlates well with a physician-administered test.
Publication TypeJournal Article
2001
AuthorsBowen JD, Gibbons LE, Gianas A, Kraft GH
JournalMultiple Sclerosis
Volume7
Issue3
Pagination201-6
Date Published2001 Jun
ISSN1352-4585
Activities of Daily Living, Adolescent, Adult, Aged, Cognition, Disability Evaluation, Female, Gait, Health Status, Humans, Male, Middle Aged, Multiple Sclerosis, Outpatients, Physicians, Questionnaires, Severity of Illness Index, Vision, Ocular

BACKGROUND: Patient-administered measures are needed to assess disability cost-effectively in large epidemiological studies. SETTING: An outpatient clinic in a large multiple sclerosis center. METHODS: A self-administered EDSS questionnaire was developed (EDSS-S). Consecutive patients with clinically definite multiple sclerosis completed the EDSS-S (n=95). During the same visit, a physician completed an EDSS (EDSS-P). Scores below 4.0 were determined using functional system (FS) scores. Scores above 4.0 were calculated by two methods, using gait alone and using gait and functional system scores combined. RESULTS: EDSS-P scores ranged from 0-9.5 (mean 5.1, median 5.0, 78% female, age 17-78, mean age 45). Mean EDSS-P, EDSS-S and intraclass correlation coefficients of agreement were: EDSS using ambulation alone (4.6, 5.1, 0.89), EDSS using ambulation and FS scores (4.6, 5.3, 0.87), bowel/bladder FS scores (1.6, 1.7, 0.79), pyramidal FS scores (2.1, 2.4, 0.67), sensory FS scores (1.6, 2.1, 0.60), cerebellar FS scores (1.1, 1.6, 0.55), brainstem FS scores (0.5, 1.2, 0.45), vision FS scores (1.9, 1.3, 0.38), cerebral FS scores (0.6, 2.3, 0.27). CONCLUSIONS: Very good correlation was seen between patient and physician scores for EDSS and the bowel/bladder FS score. Four other FS scores correlated moderately. In general, patients scored themselves more disabled than physicians.

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