Getting the Work Done: A Qualitative Study of Individuals with Multiple Sclerosis.

TitleGetting the Work Done: A Qualitative Study of Individuals with Multiple Sclerosis.
Publication TypeJournal Article
AuthorsYorkston KM, Johnson KL, Klasner ER, Amtmann D, Kuehn CM, Dudgeon BJ
JournalInternational Journal of MS Care

Multiple sclerosis (MS) affects activities of daily living including the ability to participate in work activities. Work may be defined as an activity performed to accomplish something in the presence of either physical or cognitive obstacles that might make reaching the goal difficult. The purpose of this study was to investigate the work experiences of individuals with multiple sclerosis. A qualitative research approach was used to interview 13 individuals with MS. Qualitative interpretation of the interviews revealed two major themes and seven subthemes related to work experiences. The first primary theme, defining the work, included the following subthemes: priorities (seeing what is important in daily life activities), plans (learning about resources and requirements necessary to achieve goals), and perspectives (addressing the obstacles on your own). The second major theme, changing how things get done, included precipitating factors, awareness, constructing the strategies, and evaluating the strategies. The results of this study indicated that individuals with MS develop and gather information and resources and develop strategies in order to meet work-related goals. A comparison between existing intervention programs and the information shared by participants is discussed.

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