Developing a telephone-delivered self-management intervention.

TitleDeveloping a telephone-delivered self-management intervention.
Publication TypeJournal Article
AuthorsWazenkewitz JL, Ehde DM
JournalInternational Journal of MS Care
Management of activities of daily living in MS, Psychological issues and MS

Background: Although interventions exist that address individual multiple sclerosis (MS) symptoms such as pain, fatigue, or depression, there is a need for holistic approaches to give individuals with MS tools to manage multiple symptoms in their daily lives. Self-management interventions have been demonstrated to be effective in several chronic disease populations (eg, diabetes, arthritis) but are only beginning to be applied to MS. Further, there are often barriers to accessing psychosocial programs and services, including lack of transportation or too much distance from providers. “Take Charge” is an individually tailored telephone-delivered self-management intervention developed to address these challenges. Objectives: Take Charge is a randomized con-trolled trial (RCT) evaluating the efficacy of an individualized self-management intervention. This study aims to reduce the occurrence and impact of fatigue, depression, and pain, as well as build self-efficacy for managing the multiple effects of MS. This poster will describe the development and content of the self-management intervention. Methods: Take Charge was developed using MS consumer focus group input, piloting, and adapting key concepts from other self-management and cognitive-behavioral therapies (CBTs). Results: Two 8-session telephone-based interventions were developed for this study. The first is an individualized self-management intervention. Each session focuses on key concepts of self-management: self-monitoring, goal-setting, problem solving, energy management, thought management, emotion regulation, and relaxation techniques. Participants learn and rehearse new skills as well as how to tailor them to their unique life situations. Skill-based homework is required between sessions. This intervention will be compared to an education and support intervention, with each session providing information on MS symptoms and lifestyle changes that could improve physical and emotional health. Standardized therapist manuals and participant workbooks have been developed for both interventions. Procedures were developed to facilitate telephone delivery of the intervention. Conclusion: It is feasible to adapt existing self-management and CBT interventions to address the multiple symptoms of MS. Results of the RCT will be important for determining the efficacy of this approach.

UW Medicine Multiple Sclerosis Center

Now located at Northwest Hospital & Medical Center, you may visit the clinic's website or call 206-598-3344 to make an appointment. 

Studies Seeking Volunteers:

Check out our current list of studies