Participation: A Comparison of Frequency, Importance, and Self-Efficacy.

TitleParticipation: A Comparison of Frequency, Importance, and Self-Efficacy.
Publication TypeJournal Article
AuthorsHinton K, Yorkston KM, Jensen MP, Ehde DM, Johnson KL, DiGiacomo A, Amtmann D
JournalInternational Journal of MS Care

Rehabilitation care in multiple sclerosis (MS) is typically dedicated to enhancing participation in various settings, including the home, community, workplace, and educational environments. The purpose of this study was to compare how people living with MS rank order participation in various activities with respect to three domains: frequency, importance, and self-efficacy. One hundred ten individuals with MS completed a mail survey in which they rated the frequency, importance, and self-efficacy of a range of activities. Items were rank ordered according to the mean responses to the importance dimension, and this rank order was compared to rankings for frequency and self-efficacy (ie, Can I do it?). The results suggested that importance of an activity is not necessarily reflected in the frequency with which individuals engage in valued activities. For example, managing finances, interacting socially with family face to face, and sexual activity were ranked relatively higher for importance than they were for frequency. Conversely, cooking and quiet leisure were activities that occurred frequently but were not ranked high in importance. Respondents reported that they were not able to engage in certain activities that were important to them as often as they wanted. These activities included working, getting to and from regular activities, and engaging in sexual activities. Results suggest that each dimension measured provided unique information about participation, and caution is warranted when interpreting scales of participation that only measure one dimension.

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